Caregivers and Dementia

This report presents the results of a study carried out on behalf of the Alzheimer Society of Ottawa and Renfrew County in collaboration with the Champlain Dementia Network.  The purpose of the study was to identify the needs of caregivers of persons with Alzheimer’s disease and related dementia.  While the concerns of this group of caregivers are similar to other caregivers, there are also specific challenges unique to dementia.  Alzheimer’s disease and related dementia are progressively degenerative conditions that can last up to ten years or more.  The symptoms gradually become more debilitating as individuals with dementia experience loss of short-term memory and the cognitive skills needed for daily decision-making.  This study puts forward a wide range of recommendations for improving respite options for caregivers, which are grouped into three major themes.  The first set of proposals focuses upon recognition of caregiver needs and support for their significant role.  The second group is concerned with improving the quantity and quality of services for individuals with Alzheimer’s disease and related dementia and for their families.  The third cluster of proposals seeks to reduce the costs and financial pressures associated with caregiving.

ISBN – 1-55382-276-5